Rights Under Siege

The 21st Annual Rights Conference of the National Association for Rights Protection and Advocacy

Thursday, November 21, 2002, through Sunday, November 24, 2002

DoubleTree Lloyd Center Hotel, Portland, Oregon

Note: This is a web version of excerpts of the NARPA 2002 Conference printed program.
All times and room assignments for events are presented here exactly as they appear in the final printed program. However, for this version, formatting has been altered for web presentation, and this an incomplete version of the actual printed program, which includes workshop and event descriptions and presenters' biographies, most of which are also available elsewhere on NARPA's web site.

Table of Contents

Doubletree hotel floor plan

Welcome

Schedule at a Glance

Thursday, November 21, 2002 12

Friday, November 22, 2002 12

Friday evening

Saturday, November 23, 2002 18

Saturday evening

Sunday, November 24, 2002 24

Brief Biographies of Presenters, Panelists, and Facilitators 25 (not yet added)

NARPA Mission Statement

NARPA is dedicated to promoting those policies and pursuing those strategies that represent the preferred options of people who have been labeled mentally disabled. NARPA is committed to advocating the abolishing of all forced treatment laws.

NARPA believes the recipients of mental health services are capable and entitled to make their own choices and they are above all, equal citizens under the law. To the extent that the recipients and former recipients may need assistance to support or express or achieve their preferences, NARPA is committed to promoting rights protection and advocacy which focuses on both the right to choose and the specific choices of those who request assistance. Therefore, NARPA's fundamental mission is to help empower people who have been labeled mentally disabled so that they may learn to independently exercise their legal and human rights.

NARPA Board of Directors

Pat Risser, President, Oregon

Susan Stefan, Vice-President, Massachusetts

Laurie Ahern, Vice-President, Massachusetts

Judi Chamberlin, Secretary, Massachusetts

Tom Behrendt, Treasurer, Conecticut

Ron Bassman, Past President, New York

Celia Brown, New York

Dennis Feld, New York

Pearl E. Johnson, California

Sonja Kjaer, Washington

Darby Penney, New York

Laura Prescott, Massachusetts

Harvey Rosenthal, New York

Phil Schulman, Oregon

Bill Stewart, Kentucky

Laura Ziegler, Vermont

Administrator and Conference Coordinator: Anne Krauss, New York

 

Schedule at a Glance

 

Thursday

Rights Under Siege

The National Association for Rights Protection and Advocacy's
21st Annual Conference
November 21 - 24, 2002, Portland, Oregon

Welcome to the National Association for Rights Protection and Advocacy's 21st Annual Conference, Rights Under Siege. Once a year, NARPA works hard to produce an educational conference with outstanding faculty and workshops where we can learn from and share with colleagues and come together as a community of people committed to social justice. Through this annual conference and NARPA's other educational activities, including our newsletter, The Rights Tenet, and our web site, located at www.narpa.org, NARPA works to build a learning and advocacy community throughout the United States and abroad, and to support a network of disability rights advocates. NARPA members make formal presentations at conferences throughout the year, promoting and providing information regarding rights protection and advocacy. NARPA acts as Amici in cases related to our mission of equality under the law for people who have been labeled mentally disabled. NARPA has been instrumental in providing testimony and background information on the passage and reauthorization of the Protection and Advocacy Legislation, and has been involved in the public policy debate surrounding a wide variety of issues, including advocating for fully informed consent, against involuntary treatment and outpatient commitment, and calling for the fulfillment of the Olmstead promise of independence and self-determination for people with disabilities. If you are new to NARPA, we hope that our conference will re-energize you, and that you will join our community of advocates who look forward to the NARPA conference each year as an opportunity to renew old friendships and to meet new people who share our passion and concern.

Please Note: Remember to bring your meal tickets with you for breakfasts and luncheons.

Smoking Policy: Please refrain from smoking in all meeting rooms and hallways. A number of people attending this conference are extremely sensitive to smoke and have serious reactions when exposed! We have allotted up to one-half hour breaks between most sessions which should allow you enough time to go outside and smoke. You may smoke only outside or in your designated smoking room.

Another Request: Please refrain from wearing perfumed items at the conference as many people have chemical sensitivities. We are greatly concerned about the health of all participants. Thank you.

Schedule at a Glance

Thursday, November 21

5:00 - 6:45 p.m. Registration
Holladay Foyer

6:45 - 7:15 p.m. - Multnomah Room
Welcome:
Pat Risser, NARPA President
Janine Delaunay, Director, Oregon Disabilities Commission
Bob Joondeph, Director, Oregon Advocacy Center

7:15 - 8:30 p.m. Keynote: Sustaining Hope in an Age of Denial
Multhomah Room
Joanne Greenberg, author
Gail Hornstein, Ph.D., Prof. of Psychology, Mt. Holyoke College
Introduction: Ron Bassman, Ph.D., past NARPA President

8:30 - 10:00 p.m. Reception and Buffet (Holladay Room)

 

 

Schedule at a Glance

Friday

Friday, November 22

7:00 - 8:30 a.m. Continental Breakfast (Multnomah Room)

8:30 - 10:00 a.m. Keynote: Mad in America
Holladay Room
Robert Whitaker, journalist and author of Mad in America
Introduction: Judi Chamberlin, NARPA Secretary

10:00 - 10:30 a.m. Refreshment Break

10:30 - 12:00 noon Workshops I

Three Sisters
An Ongoing Call to Legislative Action: Stop the Mass Drugging of Our Children

John Breeding, Ph. D., Director, Texans for Safe Education

Mt. Bachelor
Deinstitutionalizing the Community: The Next Challenge

Ira Burnim, J.D., Legal Director, Bazelon Center for Mental Health Law

Broadway
Pathologizing Lesbian, Gay, Bisexual, and Transgender People:
Homophobia and Transphobia in the Mental Health System

Shannon Minter, J.D., Legal Director, National Center for Lesbian Rights
Susan Aranoff, J.D., of the Connecticut Legal Rights Project
Jan Costello, J.D., Professor of Law, Loyola Law School

Weidler/Halsey
Documenting the History of Our Movement: Oral Histories

Darby Penney, Director of Historical Projects, NYS OMH (moderator)
Oryx Cohen, Support Coalition International Oral History Project
Steven Periard, New York's C/S/X Oral History Project
Leah Harris, SCI Oral History Project
Celia Brown, Director of Peer Specialist Services, NYC Field Office of Mental Health, and NARPA Board Member

Hawthorne/Sellwood
Emergency Rooms

Susan Stefan, J.D., of the Center for Public Representation

Ross Island/Morrison
The Fight Against Forced Treatment: A discussion on the recent battles against expanding involuntary treatment in California and Maryland

Sally Zinman, Executive Director, California Network of Mental Health Clients
Laura Cain, J.D., of Maryland Disability Law Center
Kathie Zatkin, J.D., MSW, System Liaison, Alameda Co. Network of Mental Health Clients

Noon - 1:30 p.m. Luncheon
Pacific Northwest Ballroom
Luncheon Keynote Presentation: The Power of the Powerless
Susan Stefan, J.D., The Center for Public Representation and NARPA Vice President
Introduction: Pat Risser, NARPA President

1:30 - 3:00 p.m . Workshops II

Three Sisters Room
Cultural Competency: Recognition of Recovery in Diverse Cultures

Jacki McKinney, National People of Color Consumer/Survivor of Network
Celia Brown, Director of Peer Specialist Services, NYC Field Office of Mental Health, and NARPA Board Member

Mt. Bachelor Room
Proposals in Congress to Amend the ADA: What Advocates Should Know

Ira Burnim, J.D., Legal Director, Bazelon Center for Mental Health Law

Broadway Room
New Developments in the "Bundling" of Housing and Services

Michael Allen, J.D. of Bazelon Center for Mental Health Law

Weidler/Halsey
Ethical Issues in Advocacy and Legal Representation of Child and Teen Clients

Jan Costello, J.D., Professor of Law, Loyola Law School

Hawthorne/Sellwood
Understanding Big Pharma

Loren Mosher, M.D., Soteria Associates
Robert Whitaker, journalist and author, Mad in America

Ross Island/Morrison
Recognizing and Overcoming Internalized Oppression

Pat Risser, Office of Consumer Technical Assistance Training Associate and NARPA President

3:00 - 3:30 p.m. Refreshment Break

3:30 - 5:00 p.m. Workshops III

Three Sisters Ethical Dilemmas: Are We Rationalizing Away Our Rights?
Coercion as consent and other disturbing trends

Kathie Zatkin, J.D., MSW, System Liaison, Alameda Co. Network of Mental Health Clients

Mt. Bachelor
Ethnic Psychopharmacology

Regina Hill, J.D., of the Center for Public Representation

Broadway
Legal and Clinical Perspectives on Eliminating the Deadly and Psychologically Damaging Practice of Restraint and Seclusion

Susan Aranoff, J.D. of the Connecticut Legal Rights Project
Laura Cain, J.D., of Maryland Disability Law Center
Maggie Bennington-Davis, M.D., Medical Director, Salem Hospital
Rupert Goetz, M.D., Medical Director, Clackamas Co.

Weidler/Halsey
"Breaking the Chains" video presentation and discussion

Lisa F. Daniels, Reading Memorial High School, Reading, MA

Hawthorne/Sellwood
Cross-Disability Coalition Work

Andy Imparato, J.D., President, American Association of People with Disabilities
Chris Griffin, Disability Law Center, Boston MA

Ross Island/Morrison
Mental health courts

Tammy Seltzer, J.D., of Bazelon Center for Mental Health Law

Friday Evening Schedule:

5:30 p.m. Come Make Your Voice Heard: Testify to the The White House New Freedom Commission on Mental Health

Hawthorne/Sellwood Room

Dan Fisher, M.D., Ph.D., White House New Freedom Commissioner, will hear and record testimony, and ensure commission members receive the testimony.

Dan Fisher, a member of the commission, will hear and record testimony from NARPA participants and ensure commission members receive the testimony. Testimony should focus on recommendations to help people labeled with mental illness to recover and lead productive, meaningful lives in the community as

stated as the executive order of the commission: "The Commission shall focus on the desired outcomes of mental health care, which are to attain each individual's maximum level of employment, self-care, interpersonal relationships, and community participation." The commission also wants examples of successful consumer/survivor-run programs and activities which help others to recover.

 

7:00 - 9:00 p.m. Friday Evening Oral History Open Forum
Three Sisters Room

Moderator: Darby Penney, Historical Projects, N. Y. State Office of Mental Health

Collecting oral histories of people's experiences in the mental health system is an important way to document individual human rights abuses as well as systemic problems. Oral histories can also serve to document the history of the consumer/survivor/ex-patient (c/s/x) movement. Many c/s/x report that giving an oral history can be a cathartic and empowering experience. This open forum will provide c/s/x with the opportunity to present their oral histories before a group; for those who wish, their oral history can be audiotaped or videotaped. Because of time limitations, people are asked to limit their presentations to 15 minutes.

8:00 - 10:00 p.m. Friday Evening Movie Screening: 41 days
Broadway Room
Facilitator: Laura Ziegler, NARPA Board Member

41 days is a rough cut of an unfinished film by Richard Cohen. The title refers to the 41 day "power outage" in Berkeley during the time that city's voter approved ban on electroshock was in effect. The film documents the earlier days of the movement for human rights and against psychiatric oppression, and includes interviews with activists Leonard Roy Frank and Ted Chabasinski and footage from demonstrations.

 

 

Schedule at a Glance

Friday/Saturday

 

Saturday, November 23

7:00 - 8:30 a.m. Continental Breakfast (Multnomah Room)

8:30 - 10:00 a.m. Keynote Presentation: On Desolation Row
Holladay
Michael Perlin, J.D., Professor of Law, New York Law School
Introduction: Dennis Feld, NARPA Board Member, New York

10:00 - 10:30 a.m. Refreshment Break

10:30 - Noon Workshops IV

Three Sisters
The "International Convention on Disability" and Our Human Rights

Tina Minkowitz, J.D and Celia Brown, NARPA Board Member
Celia Brown, Director of Peer Specialist Services, NYC Field Office of Mental Health, and NARPA Board Member

Mt. Hood
Godinez v. Moran
and Trial Competencies: Exploring New Frontiers

Michael Perlin, J.D., Professor of Law, New York Law School

Broadway
Taking Back Our Lives: Organizing Campaigns Involving Employment, Media, and Programming

Ron Schraiber, Director of Consumer Affairs, Los Angeles Co. Dept. of Mental Health

Weidler/Halsey
Lost Cases, Forgotten Lives: The Willard Suitcases

Darby Penney, Director of Historical Projects, N. Y. State Office of Mental Health Peter Stastny, M.D., Associate Professor of Psychiatry, Albert Einstein College of Medicine

Hawthorne/Sellwood
Ethical and Policy Issues in Human Subject Research

Patricia Backlar, Ph.D., Research Associate Professor of Bioethics, Portland State U.
Loren Mosher, M.D., Soteria Associates
Robert Whitaker, journalist and author, Mad in America (discussant)

Ross Island/Morrison
Implementing a Pace/Recovery Philosophy

Laurie Ahern and Daniel Fisher, M.D., Ph. D.
Co-Directors of the National Empowerment Center

12:00 - 1:30 p.m. Luncheon
Holladay Room
Luncheon Keynote: Even a Broken Watch is Right Twice a Day
Kermit Brown, Human Rights Officer, Massachusetts Dept. of Mental Health
Introduction: Susan Stefan, J.D., of the Center for Public Representation and NARPA Vice President

1:30 - 3:00 p.m. Workshops V

Three Sisters
Recent Developments in Mental Health Law

Susan Stefan, J.D., of the Center for Public Representation and NARPA Vice President

Mt. Hood
Twelve-Step Coercion: Legal and Ethical Issues

Linda Sisson, R.N.

Broadway
Resiliency Skills for Surviving the System and Making Things Better

Al Siebert, Ph.D., author of The Survivor Personality

Weidler/Halsey
Dispatches from the DD Front

Mayer Shevin, Ph.D., Facilitated Communication Institute Associate
Lisa A. Lieberman, MSW, LCSW, Board Member, Autism National Committee

Ross Island/Morrison
Establishing Trauma-Free Care

Lyn Blackshaw, Ph.D., of Oregon Mental Health and Addiction Services
Janice Perciano

3:00 - 3:30 p.m. Refreshment Break

3:30 - 5:00 p.m. Workshops VI

Three Sisters
Role and Responsibilities of the Advocate

Kermit Brown, Human Rights Officer, Massachusetts Dept. of Mental Health

Mt. Hood
The Right to Effective Treatment

Joanne Greenberg, author
Gail Hornstein, Ph.D., Prof. of Psychology, Mt. Holyoke College

Broadway
A New Vision of Public Mental Health: Creating a Legally Enforceable Entitlement to Voluntary Mental Health Services and Supports

Michael Allen, J.D. of Bazelon Center for Mental Health Law

Weidler/Halsey
Evolving Standards of Dangerousness in Forensic Commitment Cases

Dennis B. Feld, J.D., Mental Hygiene Legal Service, NY and NARPA Board Member
Kim L. Darrow, J.D., Mental Hygiene Legal Service, NY

Hawthorne/Sellwood
Psychiatric Advance Directives: Solution or Hazard?

Patricia Backlar, Ph.D., Research Associate Professor of Bioethics, Portland State U.
Michele Magar, J.D., Magar & Milstein

Ross Island/Morrison
People's True Freedom Commission: Resist Bush Administration Attacks on our Rights!

David Oaks, Director of Support Coalition International (SCI)
Judi Chamberlin, SCI Board Member and NARPA Secretary
Mickey Weinberg, MSW, SCI Board Member

 

Saturday Evening Schedule:

5:30 p.m. Award Ceremony, Raffle, and NARPA Membership Meeting

Oregon Room

7:00 - 8:30 p.m. Saturday Evening Movie Screening: Spiegelgrund
Broadway Room
Facilitator: Peter Stastny, film maker

"A film by Angelika Schuster and Tristan Sindelgruber, `Spiegelgrund' is a documentary about victims and relatives suffering from the inhuman conditions in the Viennese reformatory and the children's medical department `Am Spiegelgrund.' Their stories begin during the years of 1940 to 1945, the years of the Nazi education- and euthanasia program and run up to the present days. Typical for the Austrian way to deal with Nazi-perpetrators after 1945 is the career of Dr. Heinrich Gross, psychiatrist and medical director of the children's medical department `Am Spiegelgrund' during the Nazi-era. In 1981 the Viennese physician Dr. Werner Vogt produced legal evidence that Dr. Gross was `involved in the killing of several hundreds of supposed mentally ill children.' Nevertheless he became medical director of the psychiatric institution `Baumgartner Hoehe' after 1945 and the most active psychiatric expert in the Austrian courts in the last decades." - Directors' statement from the movie box

 

8:30 - 11:30 p.m. Party (Sponsored by Support Coalition International)

Multnomah Room
Host: Phil Schulman, NARPA Board Member and staff member, Support Coalition International

 

 

 

 

Schedule at a Glance

Saturday

 

Sunday, November 24

7:00 - 8:30 a.m. Continental Breakfast (Multnomah Room)

8:30 - 10:00 a.m. Keynote Presentation: Who Needs Professional Help?

Holladay
Peter Davidson, M.D., Medical Director, Department of Community Services, Multnomah County, Oregon

Introduction: Bob Nikkel, Community Services Manager, Office of Mental Health & Addiction Services, Oregon Department of Human Services

10:00 - 10:30 a.m. Refreshment Break

10:30 - 12:00 noon Workshops VII

Broadway
Transcending Medical Model Realities

R. Drake Ewbank of SAFE, Inc.

Weidler/Halsey
Polypharmacy: The Latest Psychiatric Fashion

Peter Stastny, M.D., Associate Professor of Psychiatry, Albert Einstein College of Medicine

Hawthorne/Sellwood
Pearl's Story - A Consumer's Perspective on the Need for Culturally Competent Services

Pearl Johnson, County of Los Angeles Department of Mental Health

Ross Island/Morrison
The investigation of the death of Mejia Poot

Stephen Mathieu, J.D., of the Oregon Advocacy Center

 


Conference discount on airfares from Northwest/KLM

Discount on airfares from Frontier Airlines

NARPA 2002 Registration form in PDF (Adobe Acrobat) format (96K download)

Confirmed and Invited Presenters - NARPA 2002 Workshops

NARPA 2002 Schedule Overview

NARPA 2002 Detailed Workshop Schedule

NARPA 2002 Conference Information - Summer Rights Tenet

NARPA 2002 Conference Page

NARPA Home